Standards of Care

Although there is currently no cure for Duchenne, high quality care can significantly improve the both the quality of life and life expectancy of patients.

In early 2010, a major international consensus document, The diagnosis and management of Duchenne muscular dystrophy, was published in the journal The Lancet Neurology. It set out best-practice care for Duchenne muscular dystrophy, and followed an extensive review process by 84 international experts in Duchenne diagnosis and care.

The document is available here on the CARE-NMD Website with special permission from The Lancet Neurology and Elsevier.

The Diagnosis and Management of Duchenne Muscular Dystrophy, Bushby et al

Reprinted with permission from Elsevier (Lancet Neurology, 2010, 9, 77-93 & 177-189)

CARE-NMD has also been given permission to host translations of the article, for the benefit of clinicians whose first language is not English.

Czech (Čeština) Translation by the Czech Parent Project.
Russian (Pусский) Translation by The Lancet Neurology, Ukrainian Edition.