The first CARE-NMD Workshop for specialists involved in DMD care was held in Budapest, Hungary on 18th May.
The workshop provided expert training on DMD care, with international speakers including Dr Janbernd Kirschner, Prof Enrico Bertini, Prof Thomas Sejersen and Dr Birgit Steffensen, as well as national speakers from the CARE-NMD consortium.
Where available, PDF versions of presentations given at the workshop are provided below:
- Overview of CARE-NMD (J Kirschner)
- Standards of Care (T Sejersen)
- Diagnosis (V Karcagi)
- Steroid Therapy (J Kirschner)
- Rehabilitation (B Steffensen)
- Clinical Trials (T Sejersen)
- Outcome Measures (E Bertini)
The workshop was well attended, with participants including approximately 40 Hungarian paediatric neurologists, neurologists, paediatricians, physiotherapists, representatives of patient organisations, and other specialists.
The organisers would like to thank everyone who attended for their support, and look forward to working with them to further develop Hungarian the neuromuscular field.