NICE accreditation of Development Process of DMD Care Standards

29 Sep 2011

The National Institute for Health and Clinical Excellence (NICE) has officially endorsed the development process underpinning the DMD Standards of Care, which set out international consensus guidelines for the care for patients with Duchenne muscular dystrophy.

The recognition of the Care Standards as "Accredited Evidence" by NICE marks the culmination of a process led by the Muscular Dystrophy Campaign and Professor Kate Bushby, which certifies the clarity and rigour of development of the guidelines. A full statement by the Muscular Dystrophy Campaign is available on their website. The accreditation has also been welcomed by Action Duchenne, who together with the Muscular Dystrophy Campaign are UK Collaborating Partners in the CARE-NMD project.

This recognition, the first for a neuromuscular condition, is a very important step in improving access to high quality care for Duchenne. It enables health care providers to have confidence that the guidelines were developed impartially and to a high standard.